Group which identifies all NZ lead provider organisations for rheumatic fever secondary prevention

Gathers information in secondary prophylaxis planning which guides subsequent medication appointments and follow-up

Gathers information about patient health at an oral secondary prophylaxis medication appointment

Gathers patient and whanau preferences and goals for rheumatic fever care

Gathers information about patient health at a secondary prophylaxis medication appointment

Describes any known patient allergies to medications used in rheumatic fever secondary prophylaxis

An active, 3 year, patient DATA consent obtained by the Te Tai Tokerau Rheumatic Fever Service, with sample data.references

An active, 3 year, patient DATA consent obtained by the Te Tai Tokerau Rheumatic Fever Service, with sample data.references

An active, 3 year, patient DATA consent obtained by the Te Tai Tokerau Rheumatic Fever Service, with sample data.references

An active, 3 year, patient DATA consent given on patient's behalf by their relative, as obtained by the Te Tai Tokerau Rheumatic Fever Service, with sample data.references

Example of consent when the patient OPTED OUT of data sharing on 01/09/2023

A provisional patient DATA consent recorded by Te Tai Tokerau Rheumatic Fever Service in anticipation of pending patient signed consent form

NZ Rheumatic Fever FHIR API

Identifies parties involved in secondary prophylaxis (preventative treatment) for a patient. Members typically comprise rheumatic fever service Organizations and Practitioners especially nurses

Profiles shared care plans used in NZ for management of rheumatic fever cases with suspected acute rheumatic fever

Extends NzCondition to add classifiers for RHD severity, diagnostic certainty and symptomatic status and specifies groups of diagnosic evidence that can be attached.

This profile constrains the codes valid on an Observation so it can represent groups of rheumatic fever diagnosis data.

Describes medication planned for a rheumatic fever patient over a period of time. Referenced as an activity in rheumatic fever care plans. Includes an extension defining the medication frequency which determines the scheduling intervals for Appointments.

NzPatient-based FHIR resource for representing rheumatic fever patients

Captures metadata about a change in careplan status

Certainty of rheumatic fever diagnosis

Codifies role this whanau member plays in a patient's care team

Tracks the RF-specific date when rheumatic heart disease severity was assessed.

Set to true if this whanau member acts as a primary contact for the patient

Frequency of rheumatic fever medication to be set when medication is planned for an RF patient

Indicates that a rheumatic fever patient has been recommended lifelong prophylaxis

In patient care teams, codifies this whanau member's relationship to the patient

Severity of rheumatic heart disease determines the severity of a patient's rheumatic fever condition.

Symptom status at time of rheumatic fever diagnosis

This value set combines SNOMED internaional codes with a handful of special codes for NZ RF diagnosis observation data coding

This value set defines SNOMED codes which represent groupings of diagnosis data captured by rheumatic fever Observation instances

This value set defines codes which describe whether a patient was symptomatic at the time of rheumatic fever diagnosis

This value set defines the codes that summarise the diagnosis of a patient with a rheumatic fever condition

This value set defines the codes that differentiate types of external identifiers held in FHIR resource Identifiers

This value set defines valid answer codes for a yes/no-type questions where it's important to be able to record an unknown or data not available response

This value set defines the codes that represent the certainty of a diagnosis of rheumatic fever in a patient.

This value set includes codes for the RF secondary prophylaxis medications / substances a patient has an allergic reaction to

This value set includes codes for the roles participants can perform in a rheumatic fever patient care team

This value set defines codes for standard frequencies of secondary prophylaxis medication planning (that is, appointment intervals)

This value set defines codes for the severity of rheumatic heart disease which determines the severity of a patient's rheumatic fever condition

Identifier type codes for differentiating types of external identifiers held in FHIR resource Identifiers

This system defines standard codes used throughout this Implementation Guide for New Zealand rheumatic fever data representation

Example of medication used in rheumatic fever secondary prophylaxis (prevention) as NZMT terminology

Example of a RF care plan CLOSED after the patient recently went overseas.

RF care plan where patient registered and basic questionnaires completed, but no detail diagnosis or appointments yet.

RF care plan where patient registered and basic questionnaires completed, but no detail diagnosis or appointments yet.

Example of an RF care plan that has been put ON-HOLD after the first secondary prophylaxis appointment, because the patient is overseas.

Example of an RF care plan with secondary prophylaxis medication planned and three appointments booked.

An RF care plan after the first secondary prophylaxis and follow-up appointments attended.

Example of a rheumatic fever patient encounter for dental specialist follow-up

Illustrates collection of ECHO cardiogram diagnosis evidence in a rheumatic fever case

Illustrates a FHIR Observation describing a Jones (twelve) criteria diagnosis for a rheumatic fever patient

Illustrates primary strep diagnosis evidence (Strepococcus group A infection is the cause of rheumatic fever)

Illustrates second strep diagnosis evidence from repeated ASOT and Anti-Dnase B tests

Encounter capturing context of a patient's rheumatic fever diagnosis

Example of a planned patient follow-up with the dentist

Example of a planned patient follow-up with the dentist

Example of patient health assessment from an encounter for oral secondary prophylaxis medication.

Example assessment of Sage's health at her August secondary prophylaxis appointment.

Illustrates details of secondary prophylaxis medication given to a patient at an appointment

Example payload demonstrating guidance defined for secondary prophylaxis patient medication and follow-up.

An example rheumatic fever patient who is Māori ethnicity and speaks Māori

Example payload demonstrating data collected about a patient's allergies to RF medication.

Example payload demonstrating patient/whanau expressed preferences and goals for rheumatic fever care.

Illustrates a request for active secondary prophylaxis medication that can appear in a rheumatic fever care plan

Illustrates planning of benzathine prophylaxis medication with a second embedded MedicationRequest for lignocaine pain relief

Example rheumatic fever patient who is a teenager of NZ European ethnicity, lives near Whangārei

Example of a teenager patient with whanau members defined as patient contacts

Example of a booked patient appointment for rheumatic fever secondary prophylaxis treatment (injection)

Example of a fulfilled (completed) patient appointment for rheumatic fever secondary prophylaxis treatment (injection)

Example of a booked patient appointment for RF secondary prophylaxis treatment with the shared care provider

Example of a Bundled POST which creates instances of Encounter, MedicationStatement and QuestionnaireResponse in one operation

Example of secondary prophylaxis care team membership

Example where RF secondary prophylaxis delivered at a Whangarei medical centre

An example of a rheumatic fever condition as initially diagnosed at registration

An example of a severe rheumatic fever Condition with linked evidence as 3 profiled Observation instances.

Identifies the Te Tai Tokerau rheumatic fever secondary prevention provider organization

Example of a rheumatic fever patient encounter at a virtual location

Identifies the Waikato rheumatic fever secondary prevention provider organization